Help us learn more about COVID-19 among people with Down syndrome
The Trisomy 21 Research Society (T21RS), with the endorsement of many international Down syndrome organizations, is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome (DS). The goal is to learn if people with DS are more vulnerable or have a different course of illness related COVID-19 and if their illness is related to their pre-existing health profile. We hope that this information will help identify who is at the greatest risk and how to better protect them.
If the person with DS for whom you provide care has tested positive or has symptoms of COVID-19, we invite you to complete this survey. It will take about 10-20 minutes to complete. It asks for: 1) general information about the person with DS, 2) their pre-existing conditions, 3) whether they were tested for COVID-19, 4) COVID-19 symptoms and 5) treatments and outcome.
None of the survey data will be linked to you or the person with DS. In other words, it will be anonymous. You might receive this request to complete the survey many times. Please only complete the survey once for each person with DS for whom you care.
Please click on the link below to start the Clinician Survey:
National Consortium Creates Important Covid-19/Down Syndrome Resource
The unprecedented spread of Coronavirus (COVID-19) presents the world with a unique challenge and calls for a united response to better understand its impact on the Down syndrome community. Down Syndrome Medical Interest Group-USA (DSMIG-USA) is proud to collaborate with Global Down Syndrome Foundation (GLOBAL) , LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), National Down Syndrome Society (NDSS), and National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and Down syndrome medical experts to publish a new resource.
IMPORTANT UPDATED DS/COVID-19 Q&A! New links and info on going back to school/work/programs & more. DSMIG-USA is proud to support GLOBAL & the national consortium.
Read and share the Q&A here: DS & COVID-19 Q&A