Updated -November, 2021
After considering the risks as well as other factors, including the effect of the pandemic on children and adults with Down syndrome and other intellectual disabilities, and the safety of the vaccines in the general population, and data available to date for people with Down syndrome, we recommend the COVID-19 vaccine for individuals with Down syndrome or other intellectual disabilities who do not have a specific contraindication to the vaccine (such as allergies as noted above).
UPDATED 11/16: National Consortium Covid-19 Down Syndrome Resource
IMPORTANT NEWS! DSMIG-USA joins forces with other nationals to create a valuable, free COVID-19 & Down Syndrome Resource for individuals with #downsyndrome and their families. This Resource focuses on new and updated information specific to testing, vaccines, mental health, ways to stay safe, and advocacy in hospital settings and for appropriate care. The unprecedented spread of #covid19 presents the world with a unique challenge and calls for this united response and Resource. Please READ & SHARE to help save lives:
JOINT Position statement regarding covid-19 vaccine
The development of a safe, effective vaccine is a critical component of the global response to the coronavirus disease 2019 (COVID-19) pandemic. Vaccine distribution and allocation must be done in a safe and equitable manner, and individuals with intellectual and developmental disabilities (IDD) must be explicitly addressed in any framework for vaccine allocation. The aim of this joint position statement is to address the risks facing people with IDD during the pandemic and to recommend how they should be included in vaccine allocation frameworks. Click here to download the statement.
Help us learn more about COVID-19 among people with Down syndrome
The Trisomy 21 Research Society (T21RS), with the endorsement of many international Down syndrome organizations, is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome (DS). The goal is to learn if people with DS are more vulnerable or have a different course of illness related COVID-19 and if their illness is related to their pre-existing health profile. We hope that this information will help identify who is at the greatest risk and how to better protect them.
If the person with DS for whom you provide care has tested positive or has symptoms of COVID-19, we invite you to complete this survey. It will take about 10-20 minutes to complete. It asks for: 1) general information about the person with DS, 2) their pre-existing conditions, 3) whether they were tested for COVID-19, 4) COVID-19 symptoms and 5) treatments and outcome.
None of the survey data will be linked to you or the person with DS. In other words, it will be anonymous. You might receive this request to complete the survey many times. Please only complete the survey once for each person with DS for whom you care.
Please click on the link below to start the Clinician Survey: