Annual Symposium 2019
Course Description and Intended Audience
This symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down syndrome clinics. The intended audience is DSMIG - USA members and other professionals working in the field of Down syndrome including physicians, research scientists, nurses, Down syndrome clinic coordinators, psychologists, dieticians, occupational and physical therapists, speech and language pathologists and social workers. Residents and trainees are welcome to attend.
In addition to the all day Symposium on Friday June 28th we are also hosting:
Thursday June 27th Members Meeting Come to learn more about what the organization has been working on this past year and opportunities to become more involved.
Thursday June 27th Welcome Reception and Poster Viewing.
Friday June 28th Clinic Coordinators meeting
Saturday June 29th Work Group Sessions: Adult Health Care, Adult Regression and Childhood DS/ASD
Remember that the meetings of DSMIG-USA and the National Down Syndrome Congress (NDSC) are separate meetings held at the same venue. Registration is required for each meeting. If you also plan to attend the NDSC Annual Conference June 27-30th 2019, go to the NDSC website for more information.
7:00 a.m. - 8:00 a.m. Registration/Check-in and Continental Breakfast
8:00 a.m. - 8:15 a.m. Welcome and Announcements, Maria Stanley, MD
8:15 a.m. – 9:00 a.m. Infections in Children and Young Adults with Down Syndrome: A National Survey - Andrew Nowalk, MD, PhD
9:00 a.m. – 9:45 a.m. Tech Tools & Solutions to Support Communication & Learning - Sean Smith, PhD
9:45 a.m. - 10:30 a.m. Moyamoya and Down Syndrome: A Pediatric Neurosurgery Perspective - Edward Smith, MD
10:30 a.m. - 10:45 a.m. Break
10:45 a.m. -12:15 p.m. The Colorful and Complex: Behavioral and Mental Health Case Studies of Children and Adults with Down syndrome - George Capone, MD (moderator), Catherine Franklin, MD, Cassie Karlson, MD, Michelle Palumbo, MD, Elisa Sannar, MD
12:15 p.m. - 1:30 p.m. LUNCH and Poster viewing
1:30 p.m. – 1:45 p.m. NDSC Update - David Tolleson- Executive Director, Kishore Velody, MD- President
1:45 p.m. – 2:30 p.m. Review of Research - Peter Bulova, MD, Kishore Velody, MD
2:30 p.m. – 3:15 p.m. Dermatologic Conditions in Down Syndrome - Jillian Rork, MD
3:15 p.m. – 3:30 p.m. Break
3:30 p.m. – 4:15 p.m. Feeding Concerns - Arwen Jackson, CCC-SLP, Jenny Maybee, CCC-SLP
4:15 p.m. – 5:00 p.m. End of Life Care - Diego Real de Asúa, MD, PhD
5:00 p.m. – 5:45 p.m. Physical Activity and Fitness for Individuals with Down Syndrome: From What We Know to What We Can Do - Thessa Hilgenkamp, PhD, Judy Kim, MD
5:45 p.m. – 6:00 p.m. Closing announcements
6:00 p.m. Adjourn