News Blog 

  • 01 Nov 2018 11:06 AM | Anonymous member (Administrator)


    LuMind Research Down Syndrome Foundation Launches the Down Syndrome Clinical Trials Network. $3M initial commitment from Alana Foundation, H. Lundbeck A/S and AC Immune SA

    https://www.lumindrds.org/ds-ctn/

     

     

  • 29 Oct 2018 10:03 AM | Anonymous member (Administrator)

     George Capone, MD and Brian Chicoine, MD presented a webinar on 9/18/2018 sponsored by LuMind Research Down Syndrome Foundation: Understanding a sudden loss of skills in children or young adults with Down syndrome. You may wish to view this yourself or recommend it to parents of your patients

    The webinar can be viewed at https://lumindfnd.webex.com/lumindfnd/lsr.php?RCID=c018fe090a4b4ea3ac563031df439369

    The webinar is one hour 53 minutes in length and includes opening remarks from Hampus Hilstrom, President and CEO of LuMind RDS Foundation followed by presentations from George and Brian. George’s presentation focused primarily on regression among children with DS and Brian’s presentation addressed the phenomenon among adults with DS.

     

  • 21 Jun 2018 9:20 AM | Anonymous member (Administrator)

     The INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) project was launched in June 2018 in support of a Congressional directive in the fiscal year (FY) 2018 Omnibus Appropriations. The directive calls for a new trans-NIH research initiative on critical health and quality-of-life needs for individuals with Down syndrome. NIH is dedicating $21 million for INCLUDE research, bolstering total funding for Down syndrome research in FY2018 to an estimated $58 million, with further support anticipated in FY2019 and beyond, pending availability of funds.

    Visit:  https://www.nih.gov/include-project

  • 25 Oct 2017 11:28 AM | Anonymous member (Administrator)

    See the landmark testimony from today's congressional hearing on Down Syndrome biomedical research

    Link: http://appropriations.house.gov/calendar/eventsingle.aspx?EventID=395058 



  • 03 May 2017 12:39 PM | Anonymous member (Administrator)

    Recently Published in  AJIDD.

    2017 May;122(3):247-281. doi: 10.1352/1944-7558-122.3.247

  • 28 Jun 2016 5:15 PM | Anonymous member (Administrator)

     This phase II study did not meet its primary and secondary endpoints on improvement in cognition and function

    Roche statement: http://www.roche.com/media/store/statements.htm

    LuMind statement1: https://www.lumindrds.org/response-on-the-roche-clinical-trial-for-clematis/

    LuMind statement2: https://www.lumindrds.org/statement-from-lumind-research-down-syndrome-foundation-on-the-roche-clinical-trials/

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