Health Care for Adults

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Health Care Resources for Adults

Health Care Resources includes: practice guidelines, reviews and research articles on adult health, health utilization, morbidity and mortality. Full text articles from PubMed Central, links to NLM PubMed abstracts and additional resources are available from this page.

DSMIG-USA RELEASES - Regression in Persons with Down Syndrome: Current Consensus Update for Families

Health Care Guidance

Global Family Friendly Guidelines for Adults with Down Syndrome, 2022

GLOBAL Medical Care Guidelines for Adults with Down Syndrome, 2021

Managing the care of Adults with DS, Jensen and Bulova, 2015

Care of adults with Intellectual and developmental disabilities: DS Wilson, 2015

Health and Disease in Adults with DS, Malt, 2013

Developmental Disabilities Grown Up-Down Syndrome, Steingass, 2010

Consensus Guidelines for Primary Health Care of Adults with Developmental Disabilities, Sullivan, 2006

Health Care Management of Adults with DS, Smith, 2001

Health Utilization

Hospitalizations and mortality in the U.S. for Adults with DS and congenital heart disease, Baraona, 2013

Demographic characteristics, health conditions and residential service use in adults with DS in 25 U.S. states, Stancliff, 2012

Morbidity and hospitalization of Adults with DS, Tenenbaum, 2012

Research and Review Articles

Co-occurring medical conditions in adults with DS: A systematic review toward the development of health care guidelines, Capone 2017

Measuring Health-Related Quality of Life of Adults With DS. Graves 2016

The Triple Challenges Associated with Age-Related Comorbidities in DS,Glasson 2013

Primary Care for Adults with DS - Adherence to preventive healthcare recommendations, Jensen 2013

Health Care in Adults with DS - A longituidinal cohort study, Jensen, 2012

Healthcare and Guidelines- A population based survey of recorded medical problems and health surveillance for people with DS Maatta 2011

Health Conditions Associated with Aging and End of Life of Adults with DS, Esbensen, 2010

Adults with DS - The Prevalence of Complications and Health Care in the Community, Henderson 2007

Use of health care guidelines in patients with DS by family physicians across Canada Virji-Babul 2007

Additional Resources

American Academy of Developmental Medicine and Dentistry

AADMD-NTG Resources on ID/Dementia

Advocate Medical Group Adult Resources

MedlinePlus Health Information DS

National Association for Dual Diagnosis

NDSC Adult Sibling ToolKit

NIH-NIA DS and Alzheimer Disease

Vanderbilt Health Care ToolKit for Adults with ID

Down Syndrome Medical Interest Group-USA

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