The 2021 DSMIG-USA Annual Symposium will take place virtually June 17-19, 2021. The symposium provides a forum for sharing of knowledge and experiences related to clinical care of children and adults with Down syndrome, clinical research related to Down syndrome, and development of Down Syndrome clinics. 

ANNUAL Symposium | Friday June 18, 2021 (all times cst)

additional activities (Not accredited for continuing education)


6:15 - 7:00 PM Member Meeting: Non-members welcome! Join us to learn about DSMIG-USA activities during the past year and plans for future activities.
7:00-8:00 PM  Poster Viewing/Q&A



4:15-5:15 PM

Therapy Workgroup;

Leader: Helen Milligan, PT, MPT

The Therapist Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages. At this workshop meeting the group will:

  • Discuss and establish goals including timelines for the upcoming year
  • Establish committees in each discipline to begin literature review regarding best practice for children and adults with DS at different ages and to look at similar recommendations which have been made for other diagnoses.

4:15-5:15 PM

Clinic Support Workgroup Meeting;

Leader: Terri Couwenhoven, MS

This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.

4:15-5:15 PM

NIH INCLUDE Project Data Coordinating Center: A New Frontier in Down Syndrome Research;

Leader: Joaquin Espinosa, PhD

The NIH INCLUDE Project has led to a massive increase in funding for Down syndrome research and its co-occurring conditions. The INCLUDE Data Coordinating Center (DCC) has been created to accelerate research into the etiology and biological pathways underlying the clinical and developmental hallmarks of Down syndrome by facilitating access to data generated by cohort studies of individuals with Down syndrome. This presentation will explain the goals and activities of the DCC, including the upcoming creation of an online researcher portal. A key goal of the DCC is to engage the medical professionals specialized in Down syndrome as key stakeholders in the INCLUDE Project.

9:00-10:00 AM 

Poster Viewing/Q&A

10:15 AM-12:15 PM

Adolescent and Adult Health Workgroup;

Leader: George Capone, MD

 This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned. Facilitators: Mary Stephens, George Capone, Thessa Hilgenkamp, Kathy Service, Brian Chicoine

12:30-2:00 PM

DS-ASD Workgroup

Leader: Lina Patel, PsyD

This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.

Click here to view any Faculty/Planner Disclosures

Registration is now CLOSED



  • Members of DSMIG-USA┬« in good standing: $119 
  • Non-members: $169
  • Students: $50
  • Group Discount: $20 off per registration when two or more register from the same organization! This coupon code is only eligible with member and non-member rates (it cannot be used with student/trainee rates).

If you would like to attend, but are not able to do so due to financial hardship, we will be providing a limited number of scholarships. To apply for a scholarship, please click here: Apply for a Scholarship

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