DSMIG-USA® is a group of health professionals committed to promoting the optimal health care and wellness of individuals with DS across the lifespan. Members of this DSMIG-USA® are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. This may include physicians, scientists, psychologists, nurses, genetic counselors, educators, therapists, clinic coordinators, and related health professionals. Members may also include individuals who engage in research or health policy relevant to Down syndrome. Most members work in specialized Down syndrome clinics, at academic institutions, university- and community-based medical centers, or private practice. Students, Residents, Fellows and other Trainees are welcome to join.
The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome! Check out the Guidelines page here.
NEW RESOURCE Down Syndrome Clinic to You (DSC2U) was created to bring the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe. We believe that geography and socioeconomics should never prevent someone from accessing the best and most timely medical information for a loved one with Down syndrome. Find out more here: https://www.dsc2u.org/
DSMIG-USA endorses Consensus Statement on Aducanumab and Persons with Down Syndrome in conjunction with the National Task Group on Intellectual Disabilities and Dementia Practices (NTG). Read the full statement here.
The first-in-kind Global Guideline was peer reviewed, edited, and published in the Special Communication section of the print and online October 2020 issue of JAMA, the Journal of the American Medical Association. DSMIG Members who participated are Peter Bulova, MD; George Capone, MD; Brian Chicoine, MD; Bryn Gelaro, MA, LSW; Barry A. Martin, MD; Dennis E. McGuire, PhD, LCSW; Kent D. McKelvey, MD; Moya Peterson, PhD, APRN, FNP-BC; and Michelle Sie Whitten, MA. The full abstract can be accessed here.
The published results of the national, randomized control trial of Down Syndrome Clinic to You (DSC2U) is available in the Nature journal, Genetics in Medicine. Dr. Jeanhee Chung is the first author on this manuscript, but, you will also recognize several other DSMIG-USA members who are co-authors: Dr. Allie Schwartz, Dr. Marilyn Bull, and Dr. Brian Chicoine. The full article can be accessed here.