Help us learn more about COVID-19 among people with Down syndrome
The Trisomy 21 Research Society (T21RS), with the endorsement of many international Down syndrome organizations, is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome (DS). The goal is to learn if people with DS are more vulnerable or have a different course of illness related COVID-19 and if their illness is related to their pre-existing health profile. We hope that this information will help identify who is at the greatest risk and how to better protect them.
If the person with DS for whom you provide care has tested positive or has symptoms of COVID-19, we invite you to complete this survey. It will take about 10-20 minutes to complete. It asks for: 1) general information about the person with DS, 2) their pre-existing conditions, 3) whether they were tested for COVID-19, 4) COVID-19 symptoms and 5) treatments and outcome.
None of the survey data will be linked to you or the person with DS. In other words, it will be anonymous. You might receive this request to complete the survey many times. Please only complete the survey once for each person with DS for whom you care.
Please click on the link below to start the Clinician Survey:
National Consortium Creates Important Covid-19/Down Syndrome Resource
The unprecedented spread of Coronavirus (COVID-19) presents the world with a unique challenge and calls for a united response to better understand its impact on the Down syndrome community. Down Syndrome Medical Interest Group-USA (DSMIG-USA) is proud to collaborate with Global Down Syndrome Foundation (GLOBAL) , LuMind IDSC Foundation (LuMind IDSC), National Down Syndrome Congress (NDSC), National Down Syndrome Society (NDSS), and National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and Down syndrome medical experts to publish a new resource.
PRESS RELEASE: National Down Syndrome Organizations combine efforts to publish Q&A on COVID-19 and Down syndrome.
Newly Updated! Q&A on COVID-19 and Down Syndrome - English abbreviated
Newly Updated! Q&A on COVID-19 and Down Syndrome - English expanded
Newly Updated! Q&A on COVID-19 and Down Syndrome - Spanish abbreviated
Newly Updated! Q&A on COVID-19 and Down Syndrome - Spanish expanded
WHO ARE THE MEMBERS OF DSMIG-USA?
DSMIG-USA is a group of health professionals committed to promoting the optimal health care and wellness of individuals with DS across the lifespan. Members of this DSMIG-USA are professionals from a variety of disciplines who provide care to individuals with Down syndrome and/or their families. This may include physicians, scientists, psychologists, nurses, genetic counselors, educators, therapists, clinic coordinators, and related health professionals. Members may also include individuals who engage in research or health policy relevant to Down syndrome. Most members work in specialized Down syndrome clinics, at academic institutions, university- and community-based medical centers, or private practice. Students, Residents, Fellows and other Trainees are welcome to join.
2020 donation goal