Table of Contents

Hotel Information | SchedulePoster Submissions | Support Form | Scholarship


Join DSMIG-USA in Phoenix!

The 2024 DSMIG-USA Annual Symposium provides an interdisciplinary forum for sharing of knowledge and experiences related to the clinical care of individuals with Down syndrome across the lifespan, clinical research related to Down syndrome, and the development of Down syndrome clinics. This year's symposium will be held July 25-27, 2024 in Phoenix, Arizona. Don't miss this opportunity to connect with fellow Down syndrome experts from around the world to share ideas, ask questions, participate in meaningful discussions and network. Registration for the Symposium will open soon!

REGISTER TODAY

Symposium Hotel

The Symposium will be held at the JW Phoenix Desert Ridge Resort. Nestled within the serene beauty of Arizona's Sonoran Desert, the Resort offers a wide range of exceptional experiences. The hotel hosts one of Phoenix's premier pickleball facilities with 17 courts, a fully stocked pro shop and certified instruction. Their spectacular pool area features five pools, a relaxing lazy river, luxurious cabana cottages and pool suites. Golf aficionados can tee off on two championship courses, complete with PGA professional instructors, tournament play and club fittings. 

Join DSMIG in Phoenix this July! Information on hotel booking will be released in the coming months, so stay tuned for updates to this page. 

Symposium Schedule

Friday, July 26, 2024

ALL TIMES ARE MOUNTAIN STANDARD TIME

AM  
8:00-8:10 Welcome and Announcements, Katie Frank, PhD, OTR/L
8:15-9:00 Developing Capacity for Community-Based Participatory Research - A Community Research Advisory Board (CRAB)-Led Initiative, Dara Mendez, PhD, MPH; Mario Browne, MPH, CHES, CDP
9:05-10:05 Car Seats, Booster Seats, and Seat Belts; How to Make Them Work in Down Syndrome, Marilyn Bull, MD, FAAP, CPST; Anthony McGovern, MS, OTR, CPST
10:05-10:20 Break
10:20-11:05 NIH Panel, Huiqing Li; Melissa Parisi, MD, PhD
11:10-12:10 Top Posters, Andrew McCormick, MD
PM  
12:10-1:10 Lunch
1:15-2:45 Supported Decision Making Joint Session, (Noemi Spinazzi, MD, Moderator); Andrew McCormick, MD; Jon Meyers; Carolyn Tellalian, LCSW
2:45-3:00 Break
3:00-3:45 Sedation and Down Syndrome, James Hunt, MD
3:50-5:05 Part 1: Growing Pains: What We Know About Growth Hormone and Down Syndrome & Reaching New Heights
Part 2: Research on Musculoskeletal Abnormalities and IGF1 Signaling in Down Syndrome, Tariq Ahmad, MD; Joaquin Espinosa, PhD, Noemi Spinazzi, MD; Larry Suva, PhD
5:10-5:55 Practice Changing Articles - Update in the Medical Literature, Peter Bulova, MD; Kishore Vellody, MD
5:55-6:00 Closing Announcements, Maria Stanley, MD

 

Additional Activities

Thursday, July, 25, 2024

The Thursday activities are not accredited for continuing education credit.

3:00-4:30 PM Therapy Group; Leader: Helen Milligan, PT, MPT

The Therapy Workgroup is a community within DSMIG-USA whose members are therapists and/or educators in the areas of Occupational Therapy, Physical Therapy, or Speech Therapy. The group has an interest in advancing knowledge regarding best practices as it relates to therapy when treating those with Down syndrome considering commonly seen issues which may respond to therapy interventions at various ages. 

3:00-4:30 PM Clinic Support Committee; Leader: Mary Stephens, MD, MPH, FAAFP, FAADM

This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories. 

5:00-5:45 PM Project ECHO; Brian Chicoine, MD; Hannah Graham, MD

A 2021 study estimated that only 5% of adults with Down syndrome in the United States have access to a specialty clinic for adults with Down syndrome. While a comparable study of pediatric Down syndrome specialty clinics has not been conducted, the experiences of many DSMIG-USA members suggest that there is also inadequate access to pediatric Down syndrome clinics. In an effort to improve the medical care of individuals with Down syndrome who do not have access to a clinic and to support their healthcare providers, DSMIG-USA developed Down Syndrome Project ECHO in 2023. This presentation will provide a mock session of a Project ECHO meeting and demonstrate how an expert panel and other participants discuss and respond to a presentation by a healthcare provider seeking assistance with medical care for a person with Down syndrome. 

5:45-6:45 PM Member Meeting

Join your peers as we gather to celebrate the important programs that impacted DSMIG-USA since last year's meeting. Reports will be shared from committees, workgroups, and officers. 

6:45-8:30 PM Welcome Reception

Don't miss the chance to connect and engage with DSMIG members! Enjoy an evening of delicious hors d'oeuvres and refreshing drinks as you reconnect with fellow attendees in a relaxed and informal atmosphere. 

Saturday, July 27, 2024

The Saturday workgroups are offering continuing education credit (MOC credit will not be offered)

7:30-9:30 AM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD, Mary Stephens, MD, MPH, FAAFP, FAADM

This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned. 

9:45-11:45 AM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD; Margaret Froehlke, RN, BSN

This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting. 

Poster Presentation Submissions

Poster Presentation Submissions are now closed.

The Down Syndrome Medical Interest Group (DSMIG-USA) Annual Symposium will be in person on Friday, July 25, 2024, at the JW Phoenix Desert Ridge Resort. You must register if you are planning to display a poster - registration will open in March 2024. 

YOU MAY WISH TO CONSIDER SUBMITTING:

  • Original clinical research findings
  • A case presentation that is particularly instructive
  • An informational poster about a new program initiative or update
  • An Adult health review. For a recap of how to get your Poster started, check out the recording from 2023 of the DSMIG-USA Adult Workgroup Literature Review Poster Session Tips & Tricks, although the dates are different this year, the process remains the same. 

ABSTRACT SUBMISSIONS:

Submissions are due at Noon on Monday, April 15, 2024. If you are interested in submitting an abstract/poster you will need to submit the following:

  • Abstract Limit 250 words
  • Abstracts should be attached as a Word document. 
  • Title your Word file as " Abstract DSMIG 2024 *2-3 word title*, *last name* " - of corresponding author. 
  • Provide full names of all authors, and corresponding authors names below. 

The Poster Review Team will review and send acceptance by May 13, 2024.

If your Abstract is selected, you will be required to submit your poster as an ePoster PowerPoint slide AND an accompanying 2-3 minute Video Poster Presentation. These will both be due by noon on Monday, June 17, 2024. Please make this recording using zoom. We are asking that you please keep your video ON during the recording, so that viewers can see you and your poster / poster slides. A link to a tutorial on how to make a recording can be found here.  

During the poster viewing sessions, we expect you to be "live" and available to answer questions during poster Q&As. 

Symposium Supporter Form

Your support matters to DSMIG-USA. Organizations that support the DSMIG-USA Annual Symposium highlight their support for the optimal health care and wellness of individuals with Down syndrome across the lifespan. Your support will help us achieve our goals to:

  • Educate professionals and trainees on the latest research and comprehensive care regarding Down syndrome.
  • Facilitate a network of health professionals caring for individuals with Down syndrome.
  • Support the development of Down syndrome Clinics.
  • Identify and disseminate best practices of care.
Support the 2024 DSMIG-USA Annual Symposium

Scholarship

The goal of the Down Syndrome Medical Interest Group (DSMIG-USA) Scholarship Program is to provide financial assistance for recipients to attend the DSMIG-USA Annual Symposium. The number of scholarships awarded each year will depend on available funding. The 2024 conference will take place from July 25-26, 2024 in Phoenix, Arizona. Two scholarships are available: The Rising Star Scholarship and Financial Need Scholarships. 

Learn More and Apply