Why was it developed?

Project ECHO was developed to support health care providers who care for individuals with Down syndrome. Many people with Down syndrome do not have access to a specialty clinic for people with Down syndrome. They receive care from health care providers who may not have much experience in caring for people with Down syndrome. This program provides an opportunity for these providers to seek input from expert providers with significant experience in caring for people with Down syndrome.

What is the format?

Health care providers who are seeking input on the care of a pediatric or adult person with Down syndrome will present a de-identified case study. All attendees in the session are invited to participate in a discussion of the case. A 15 minute didactic session will be provided after the case discussion.

Who should attend?

Health care providers of individuals with Down syndrome are invited to attend. These may include physicians, nurse practitioners, psychologists, social workers, nurses, therapists, and others.

We encourage people with Down syndrome and their families to share information about Project ECHO with their health care providers; however, people with Down syndrome and their families are not invited to attend.

What are other benefits?

There is no cost to participate in program. Additionally, health care providers can earn continuing medical education credit for attending. CMEs will be available beginning with the May 2023 session.

Who should I contact for more information?

Please contact EPerkins@raybourn.com if you are interested in participating in DSMIG’s Down Syndrome ECHO.