Speaker Series Overview
The Down Syndrome Medical Interest Group-USA (DSMIG-USA®) Speaker Series consists of webinars and enduring materials designed to share knowledge and experience related to the care of children and adults with Down syndrome and clinical research related to Down syndrome. The intended audience includes primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees. The education includes live webinars that will be recorded and posted later as enduring materials. There will be a separate registration for the enduring programs.
SESSION V & VI: REGRESSION & Down SYNDROME
Date: March 14, 2023 – Part 1 & May 9, 2023 – Part 2
Time: 7:00 – 8:00 PM EST
Individuals with Down syndrome may experience regression in previously acquired skills. This two-part webinar will present panel discussions on regression, with a key focus on Down Syndrome Regression Disorder (DSRD). This condition occurs most commonly between the ages of 10 and 30 years and is associated with loss of skills in language, cognition, behavior, motor and adaptive skills. Discussion will include what we currently know about DSRD diagnosis and management.
Objectives:
- Discuss potential causes of loss of developmental skills in a person with Down syndrome
- Review the symptoms of Down Syndrome Regression Disorder and the recommended diagnostic workup
- Present treatment approaches that may help the individual with DSRD
Speakers:
Eileen A. Quinn, MD
UT College of Medicine and Life Sciences
Lina Patel, PsyD
University of Colorado School of Medicine
Robyn Filipink, MD
UPMC's Children's Hospital of Pittsburgh
Dr Cathy Franklin
QCIDD Queensland Centre for Intellectual and Developmental Disability
Mater Research Institute - University of Queensland
Registration For PArt 1 here Registration For PArt 2 here
SESSION IV: PEDIATRIC GUIDELINES
Date: October 25, 2022
Time: 7:00 – 8:00 PM EST
Speaker: Marilyn J. Bull, MD, FAAP; Morris Green Professor Emeritus; Department of Pediatrics Indiana University of Medicine; Neurodevelopmental Pediatrician, Riley Hospital for Children
In this webinar, Dr. Bull will share an informative update on the Pediatric Guidelines. Upon completion:
- Participant will understand how to best communicate news of Down syndrome diagnosis to families.
- Participant will learn new recommendations for hematologic testing.
- Participant will learn new recommendations for thyroid testing.
- Participant will understand enhanced recommendations for evaluation of co-occurring autism and behavior problems in Down syndrome.
- Participant will learn how to access the American Academy of Pediatrics Health Supervision Guidance for Children and Adolescents with Down syndrome and utilize the resources it provides.
Watch the Recording Here
If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.
SESSION III: Behavioral Strategies in Down Syndrome: A Multi-Disciplinary Approach
Date: May 18, 2022
Time: 7:00 – 8:00 PM EST
Speakers: Lina Patel, PsyD and Katie Frank, PhD, OTR/L
In this webinar, Drs. Patel and Frank will discuss the following in relation to individuals with Down syndrome of all ages…
- Common behaviors and the reason for them
- Strategies that can be used to address these behaviors
- Different approaches to behavior by discipline
Watch the Recording Here
If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.
Session II: ADULT HEALTHCARE GUIDELINES
The First Evidence Based Medical Care Guidelines for Adults with Down Syndrome:
What Medical Providers Need to Know!
Date: January 11, 2022
Time: 7:00 - 8:00 PM Eastern
Speakers: Peter Bulova, MD, Brian Chicoine, MD & Bryn Gelaro, LSW
Adults with Down syndrome require specific medical care that can differ from the general population, but most do not have access to Down syndrome specific medical provider. To address this need, the Global Down Syndrome Foundation Medical Care Guidelines for Adults with Down Syndrome were created and published in JAMA in 2020. In this webinar, GLOBAL Guideline authors will share the 9 medical topics covered in the first version of the guidelines and the evidence supporting the guideline’s 14 recommendation statements. Attendees will learn how to access and share the Global Guideline with their patients, plus get a look at the newly created toolkits, language translations and family-friendly version. In addition, the speakers will share the current gaps in the literature base and the future research needed for the next Global Guideline update, expected in 2025-2026.
If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.
SESSION I : DOWN SYNDROME 101 AND 202
Speakers: Peter Bulova, MD; Mary Stephens, MD, MPH
This session is intended for primary care physicians, specialty physicians, advanced practice providers, psychologists, dietitians, occupational and physical therapists, speech-language pathologists, social workers, genetic counselors, research scientists, residents, and trainees.
At the conclusion of this presentation you will be able to:
- Discuss common conditions in individuals with Down syndrome (DS)
- Describe ways to promote wellness throughout the lifespan of individuals with DS
- Identify resources to reference to help provide better care for individuals with DS that you support
If you would like CME credit, please follow these instructions to access the registration form through our partners at UW.
